June 1, 2012 § 1 Comment
No flippin way.. My little guy is already one year old! Where does the time go?!
It seems like just a week ago I was holding him for the first time, and I couldn’t take my eyes off him… and Brian and I were scared shitless. (Sorry for my “french.” Lol)
Then he smiled at me for the first time (and I actually got a picture of it!) It was not easy getting this one to smile in the beginning..
…. And he really hated baths…
Then he started laughing.. and screaming…it was all over from there. 😉
Slept like a champ from the very beginning
Always known how to make people laugh.
Now it’s hard to get him out of the bath. It will be a great day when “sponge baths” are over.
San Fran… We actually got a family picture! It’s amazing..
..And here is the one year old boy. I have always loved being his mom, even with all the spit up, snot, poop, pee, dead arms from holding you all night ( oh, teething).. and then there is the laughter, crazy faces and moments that have completely melted my heart.
I am so happy that my little smiling face is back after four very long days of not seeing it.
Happy First Birthday Saw-Red. I love you so very very much 🙂
June 1, 2011 @ 7:47am 9lbs 2oz
May 25, 2012 § 5 Comments
The night before his surgery was great. He was in a good mood, he had just received a bunch of new toys from my moms co workers ( thank you!!) and he loved all of them. That made the nerves settle down a little bit. I think Brian and I got about 3 hours of sleep. 3:30am is flippin early.
We loaded my 50 bags into the car ( Hey, you never know what you’ll need.. and it was really only 4…) and then put Sawyer in his car seat, thankfully he fell back to sleep on the way down.
We arrived at Shriners a little early, so we sat down in the main lobby and watched some Youtube videos with Sawyer. Then up to the 4th floor we went. They took his vitals, asked us some questions, read their 4 pages of rules, picked out his cast color and then back to the waiting room.
At about 6:30 they took us over to Pre-Op, where he was a total Ham of course.
Around 7 he started getting cranky, and I think he knew something was going on. They gave him a drug to calm him down and that’s when things got funny. He was officially… drunk. Laughing hysterically at pretty much everything and then we would start laughing. At one point I had to stop laughing because I was close to becoming hysterical. Haha.
….30 minutes later he was wheeled away and I lost it. I knew it was for the best and he would be “gassed” out before they poked him with any needles. I felt better after a few hugs and we found that as soon as the anxiety passed we were starving. We all headed down to the cafeteria.
I have to say that those 3 and half hours were some of the longest but also very short at the same time. I had a banner of words going around in my head the whole time, “I hope everything is going okay.” After hour 3 had passed we all started to get anxious again. Wishing the doctor to walk around the corner and tell us everything went great, and that’s just what he did. He told us that they were able to save the whole leg. They took a tiny wedge out of the bow ( which was at a 130 degree angle, whoa) and then straightened it up, in simple terms. Removed the front part of his foot and attached the calcaneus,aka the heel bone, to his tibia. His leg is a little shorter than the other but it’s nothing a prosthetic foot can’t fix.
Seeing him in recovery was a little hard at first. His eyes were very glassy and he couldn’t focus. He was on the pale side and very hoarse from being intubated but he was telling me all about it and trying to point.
His right hand was completely covered in tape and gauze to keep the IV in. He was pissed about it. Banging his arm against anything he could. Rubbing it on his face, has a few lovely scratches on his face from that. I sat down with him in a rocking chair and he fell back to sleep for a little bit. After Brian was allowed back he woke up again for a little bit. They wheeled me down to the 3rd floor because Sawyer wouldn’t let me put him down..Hey, I was tired.. I didn’t mind not walking.
For the rest of the day he was pretty upset. Feeling weird from the anesthesia, in a lot of pain from his leg because the nerve block wore off a lot sooner than they hoped and he couldn’t use his good hand. They pumped him full of morphine and he was in and out for the rest of the day. He slept for a good 6-7 hours that night, waking up every 30-45 minutes, either from pain or from being itchy, a lovely side affect of anesthesia.
Thursday was much better. He woke up in a pretty good mood, still very very tired. He didn’t have his hand free so it was pretty impossible for him to do anything but flip pages in his books. His surgeons came in around 7am, they told us that if he does well on just oral meds until about 2pm then he can go home. We looked out the window for a while and then went for a ride in a wagon. The rest of the day was spent walking around the halls or rocking him in the chair while he slept.
After we got home, he was immediately happier. Playing with toys and reading books. Around 8pm he started getting a fever, 100.9. Then at about 11pm when it was time for pain meds it went up to 101.7. I called Shriners because they didn’t want it to get up passed 101.5. The doctor told me to keep an eye on him. Last time I checked it was back down to 100.8 and by the time he wakes up hopefully it’s down a lot more.
It’s currently 10am and he’s still passed out… sideways, on our bed. The crib was a no go last night.
Anyway. Thank you so everyone for your positive thoughts and prayers for Saw on Wednesday. It really means a lot.
We are finally on the road to recovery. He gets his cast off on July 2nd. Surgery to remove the pin that’s holding the bones together while they heel will be at about 8-12 weeks after surgery and then he will be fitted for his prosthetic!!
We are still working on getting him to smile. Hopefully we accomplish that today.
Here is a look at his cast
….And him being goofy..
May 21, 2012 § Leave a comment
So today was Sawyer’s pre-op appointment. Just checking things out, taking x-rays( which he was PISSED about, but we got through it in about 5 minutes)
We talked to all the doctors that will be there on Wednesday and everything sounds great,scary, but great. They said depending on how he is feeling it will hopefully only be one night in the hospital.
We found out that they might be taking more bone out than we had originally thought but they are going to try and save the bowed part of his leg by breaking it and straightening it out. If not, they will cut that part out and attach his heal to the bone above the bowed part.
The cast will be on for 6 weeks, his knee will be bent in the cast, hopefully making it harder for it to fall off. We found out that pretty much every kid finds a way to crawl in the cast, we just have to keep an eye on it. They will be inserting a pin or screw to keep everything “together” while it’s healing. At about 8-12 weeks after surgery that will need to come out. So, he will be going back under the knife. After they take the screw out, he will be fitted for his prosthetic foot. Yay!
Before I headed down the hill to Shriners, I received a call letting me know what time to be there and when to stop feeding him.Tomorrow night I will be packing our bags and hopefully sleeping. Will be a long day ahead, starting at about 3:30 in the morning.
There are some very exciting things in our future, like Sawyer’s first birthday and his party. Moving downstairs to my parents basement, Lol. After living in my old room for more than 6 months that is SO AWESOME.
I will keep everyone updated on Wednesday 🙂
May 14, 2012 § 1 Comment
So today while I was giving Sawyer a bath, I received a call from Shriners, as soon as I saw who was calling my heart dropped. I definitely thought they would be pushing the surgery back again. To my surprise she asked how May 23rd would work for us. UM, YES! Let’s do this!
After I dried him off and lotioned him up, I sent out texts and phone calls…. and then I started to freak out. As I told my sister in law, there will be a lot of yoga and most definitely the occasional freak out in my near future but it’s all for the best because we are that much closer to him standing on his own and eventually walking.
So, we will be getting a call the morning before the surgery letting us know what time the surgery is and what time to arrive.
He will be in the hospital for 3 days. Not sure if that means he will be coming home on Saturday or Sunday, depending on the time of the surgery. I will keep everyone up to date and I will be taking a lot of pictures, I’m sure.
…. Now who has a cigarette..?!
May 4, 2012 § 4 Comments
A couple weeks ago I got impatient and called Shriner’s to find out why I hadn’t received a confirmation call about his surgery on June 15th. They informed me that he ended up not making it on to the June list and he was pushed to the beginning of July.
Needless to say I was pissed. It sucks watching Sawyer try to stand on his own and maybe even try to walk, unsuccessfully. But I tried to look on the bright side, maybe other kids needed surgery more than he does, so they get to go first.. and then that pissed me off even more. “He can’t keep being pushed to the back of the line!” I cried.
Well I got over my selfishness and am happy that Sawyer can at least crawl and stand up while holding onto something. It will happen when it happens.
This morning I was woken up by a call from Shiner’s (finally) telling me that his surgery date is July….20th. Still not the beginning of July but hey we have a date, and I’m happy about it.
Now all that’s left to do is get a pre-op appointment and we are set!
Have a good day all!
April 19, 2012 § 2 Comments
This morning we made a trip down to Kaiser so their hand and upper extremity surgeon, Dr. Kinnucan, could take a look at Sawyer’s hand.
After Saw’s last appointment at Shriner’s we were pretty unsatisfied and wanted to get a second opinion, and we are definitely glad we did.
We asked our 20 questions; Is his hand growing, is his arm growing normally, will we ever be able to do anything to “fix” his fingers so he can bend them and so on. Then she asked hers; is he pulling himself up, crawling, putting food in his mouth with finger and thumb. We gladly answered yes to all.
Dr. Kinnucan then took a look at his hand and suggested that they take another X-ray. So we walked over, sat in the waiting area behind three other people, Sawyer immediately became the Ham he is and made everyone laugh. When it was our turn we walked in, sat down and walked out not even 5 minutes later. Nice job bud!
Let me just say right now that I love Youtube.. without the help of The Shapes Song and Alphabubblies Jumping, the wait to see the doctor again.. would have sucked.
So to get to the point of why you’re all reading. Dr. Kinnucan discovered that the pinky on his left hand only has 2 phalanges,( bones in the fingers) the distal ( tip) and the proximal ( closest to the hand) and there is a little tiny spot on the x-ray that could either be the under developed intermediate phalange (middle) or a growth plate. If it happens to be a growth plate they will need to operate and take that out so his finger doesn’t grow sideways.
His ulna and radius appear to be growing normally, but the ulna is a little behind. His fused fingers may not have tendons and that could be one of the reasons why he can’t bend them. He will get another x-ray in 6 months to make sure everything is okay.
She said it is a possibility that they could take the fused fingers and make it a thumb or remove one of them and then he would use a prosthetic thumb.
In the near future we will be looking into a cybernetic hand prosthesis. Then he would be even more of a badass and get all the best ladies.
He finally likes grass. He even tried eating it. Realized it didn’t really taste that great and started gagging on it trying to get it out..
Thanks for taking the time to read. Until next time!
March 14, 2012 § 4 Comments
So today I called Sawyer’s Orthopedic Case Manager because we hadn’t heard from the surgery department and I was beginning to wonder when exactly they were going to call. She informed me that they were still calling people for May surgeries and as soon as they were done they would be calling for June. She also told me that she looked it up and they have him penciled in for June 15th and if that date works for us, then I should call the surgery dept. and ask them to write it in pen (ha-ha…no? okay..)
I called Brian, he told me that his quarter will be ending on June 13th, so it turns out, it’s perfect.
So after my little man turns one and we have his first party, he will be getting his new leg shortly after. What an awesome present, right?